So we have not put Skye's trach in for months now. I do put the cannula (tail of the trach) into the stoma (hole) each night just to keep it open, but its out the rest of the time. I truly belive the trach doc just wants to keep her trached for the $$$. Yes, there you go, I thought it for a long time, now I said it out loud. They went to do a bronchoscopy last week, but the anesthetist at our local hospital was not happy putting her under without a PICU back up, so her procedure was canceled. No probs, now I guess we will be referred to someone else to decide whether or not we can take her trach out, when in reality I took it out last May. Ho hum, here are some updated photos!
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| This is what he does when you say 'show me your teeth!!' |
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| Having fun with mashed potato. |
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| Isn't she beautiful!!!! Skye on the giraffe feeding platform |
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Last May on their 2nd birthday at disney. You can see how much bigger Henley is !
Henley trying to use Skye's feeding tube on himself
Henley playing with Skye's trach |
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Oh my gosh, those videos of Henley are too funny! I've been thinking about you guys a lot the last couple weeks- I got a little man with a mic-key I've been taking care of. Makes me miss Skye! :(
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