Henley can swim!!

Yes, Henley has finished all of his swimming lessons and has passed his infant swim course! He is very confident in the water and loves it!. I have posted some short videos of him with his instructor ...

Also this month, we had a visit from my frind April with her triplets. They stayed over and we had a lot of (noisy) fun. Skye is like a social butterfly and loves the attention. Next time I will take proper footage, these were just little 'shorts'!!

Finally on the whole trach issue, we are going for another sleep study which Dr Weatherly the Pulmo has arranged. I am much happier with this rather than doing a bronch with and ENT under general anesthetic, and we really just need to see if Skye is using her tracheostomy opening at all (I think she does). He says if she isnt using it, the stoma should be surgically closed, but if she is using it, we should allow it to stay open (like it is now without a tube) as it shows she still needs some of the support it gives her. We can keep checking her every 6 months or so with a sleep study till she isnt using it anymore, and even though it doesnt show physically what her trachea looks like inside(like a bronch would) it will show us the physiology of her trachea (how it is working in practice).I am very happy with this, and even if she has to keep the little hole in her neck open right now, it seems like a huge improvement on the trach tubes, ties,and suctioning we had till recently!