Sleep study number 3

This week Skye went for her 3rd sleep study at the Arnold Palmer sleep unit. They monitored her without the trach and her stoma open, and with it covered up with a band-aid (very hi-tech). We will see what they say when all the data is reviewd - my guess is it will be hard to find anything out as I think she slept for a total of 2-3 hours max. She went to sleep finally at 11pm, and they kept coming in all the time to adjust her canula, reconnect a wire, turn her over, cover the stoma, adjust the canula, etc and on it went. Each time she woke up, she started crying and pulling off her bandages (they bandage their faces to protect the electrodes on the face) so of course we would then have to start over. Finally after they wanted her to move from her stomach to her back again (she always has been a stomach sleeper) she woke up and after an hour of trying to get her back down (she was up and babbling) they abandoned the study. i think that was about 4am. Next time, its Keith's turn.....



Dont know how she slept at all with all this on.....

On the way to the study, I had to drop Henley off to Keith as he was finishing work, and the babies got to have fun and run around... as he was tidying up they were tipping stuff out he he he....

Skye was having fun and was very upset to leave (we had to get going for the study) so threw one of her hissy fits, which she is getting really good at. Notice how at the end she stops suddenly, thats because daddy came over... they are both so good for him, and only do this for me!

Finally, just wanted to say how gorgeous Skye's hair is and show all of you who havent seen her in a while how long and thick it is....I would love just half her hair!. Also there is a photo of Henley's 'tattoos' which he gave himself when he was left alone for a minute with a marker pen (well, could have been his face)


the tattooed toddler