2 years today since Summer died

I can't believe a whole two years has gone since Summer died..... In Feb 2010, all three babies were at home and I remember life was very fast and stressful with everyone on monitors (Henley just when asleep) and Summer and Skye on CPAP, oxygen, tube feeds, nebulizers etc etc. It was a as  crazy time and upon reflection, now life is relatively calm - yes Skye still has her trach and feeding tube, but there are no more machines, no more constant beeping and no more being in a state of high alert at all times. Although we dont know how Summer would have been if she hadnt died 2 years ago today, I like to think she would be off the vent just like Skye (they did have the same settings most of the time) and might even have had her trach out, as she only needed hers for ventilation, not due to trachea damage (like Skye has). We know she had some brain injury and her little legs were stiff, so I dont imagine she would have been walking but I always knew her mind was good so it didnt matter that her body might not work like it should - She would look at you with such intensity and there was a connection and understanding in her eyes that let me know no matter what had happened to her, she was still Summer inside and she was going to be ok... and it is this part of Summer that I miss the most.

Here is Summy aged about 7 months

Hanging out and watching TV!

Poop Fest!

Apologies for my lame posting, but my main reason for a new post is usually to show updated pictures, and as we left our camera at someone's house last month (and are still waiting for it to come back in the mail) I dont have anything to upload. Although lacking in pictures, we are not lacking in drama - I consider myself lucky in that we have had relatively few vomit or poop disasters, but the other night Henley changed all that. He is taking off his clothes and diaper ALL the time now, and as long as he is wearing at least a diaper when visitors come I am happy. So the other night as usual he stripped off and as he ran over to me in the lounge I could smell poop. I got off the couch to investigate just as he smeared bear claw tracks of poop all over the seat of our couch... One bathed baby and scrubbed couch later, I think things are good, until I see Skye with something in her mouth...I look (as I hadnt given her anything) and yes,  it was a nugget of Henley's poop OMG... I also discovered it on her feet and she had been walking it around the carpet in the family room... One more baby bathed and one rug scrubbed, I decide I can still smell poop... now Henley is naked again and has smushed poop into the couch of the family room while I was bathing Skye. At this point I'm red hot and decide ITS BEDTIME PEOPLE.... So we go to bed, and as Henley gets into our bed (he still sleeps with us), he is once again naked and smears a big poop smear all over the bed and 2 pillows. Its a good job neither of them can talk, as I wouldn't like them to repeat anything I said at this point as I stripped the bed, changed Henley and got them to sleep for the night... I think its time to potty train for sure.....

As for Skye eating poop, I cant believe she wont eat food , but will eat poop! (yuk) Just wondering if it as disgusting as the time I caught Henley drinking Skye's stomach contents by sucking out of her G-tube last year? Its a toss up....