GI doctor

Skye went to see the GI doctor this week. She goes every 3 months and he usually increases her feeds slightly and then thats it for another 3 months. This time he didnt increase her feeds as her weight (23lb) showed consistent growth so we remain on 900 cals a day of Pediasure (plus a few grains of rice and crumbs of toast). What he did want to do was re-instate speech therapy. I said NO.

Last year we had about 6 weeks of speech therapy which I will go out on a limb and say was a complete and utter joke/waste of money. I'm glad I wasnt paying for it personally or it wouldnt have gone on for 6 weeks. Here is my venting list of why we are not having speech 'therapy'

1. Therapist visits lots of kids in the area then comes to you, passing on anything they might have. The ONLY times Skye got sick last year was when she had speech therapy.

2. we spent more time doing sign language and playing than eating ???!!!!

3. When I said I didnt want it anymore they got nasty with loosely veiled threats along the lines that I'm putting my child at risk blah blah blah. I dont take kindly to that.

So her GI doc said he was concerned that we are not pushing her to eat. We were origonally waiting for her trach to come out (she took bottles no problem before the trach) but that never happened, so he wants us to start her eating. I explained that I can MAKE her eat and drink (syringe) and I have done it often but she doesnt like it and its not pretty.

So heres the deal we made. NO SPEECH. I agreed (begrudgingly) to a swallow study ,scheduled locally for Thursday to rule out any physical issues that may have been present/and/or developed, and if all is good on the study the plan is to get tough......

No photos for now, I do have some which I will try to add in the next few days....

Right now I'm going to get some sleep. The babies have a playdate with the Ray triplets tomorrow. They were also a set of quads born a week apart from our babies and they always enjoy playing together!!!!